Ask NOAH About: Muscular Dystrophy
- The basics, genetics, diagnosis, care and treatment, specific types and information resources. From NOAH (New York Online Access to Health).
Becker Muscular Dystrophy Information Exchange - This web site serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
DMD Information - Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
DMD Options - Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy.
DMDpioneers.org Forums - Forum about living with Duchenne Muscular Dystrophy. Discuss prolonged survival, daily living and quality of life issues for people with DMD.
Dr. John R. Bach - The DMD/SMA/ALS Doc - This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care.
Duchenne/Becker Muscular Dystrophy - Section of Your Genes, Your Health Website focusing on Duchenne and Becker Muscular Dystrophy. Includes key facts and animated slide shows of causes, diagnosis and treatment of Duchenne & Becker Muscular Dystrophy.
Duchennes - Provides links to medical and non-medical organizations and people with Duchennes problems.
FSH Friends - This site is a resource for individuals and families interested in Facioscapulohumeral Muscular Dystrophy.
A Guide for Parents - This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
HealtHub - A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations.
MDA Ride For Life - Pennsylvania Ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, May 3-4, 2003.
Muscular Dystrophy Campaign - Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
Muscular Dystrophy Community - Message boards and chat dedicated to sharing information, offering support, and coping strategies to better cope with this disease. Community moderated by volunteers.
NINDS Muscular Dystrophy Information Page - Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
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- The basics, genetics, diagnosis, care and treatment, specific types and information resources. From NOAH (New York Online Access to Health).